My apology to the Sunday riverside strollers

So back on a beautiful sunny morning in May I decided to go for my long run, it was the perfect day for it I felt.

It all started so well plodding along listening to my podcast watching the world go by on my run. Of course, me being me this calm relaxed enjoyment of my run was to be too short-lived. There was nothing to trip over I was on a perfectly flat tarmacked towpath when I come tumbling down and destroy my knees. This was pretty standard behaviour for me so up I get and on I go assuming the bleeding would soon stop as I had every intention of completing the full route.

Onwards we go and I do seem to get a couple of odd looks, I glance down (very risky business for me and my balance) to see blood has made its way down both of my shins. Fantastic. Again, I have become far too used to this sight to be concerned so I keep plodding on. I really would not have made it to 29 and still be running if I struggled at the sight of my own blood. I have created some real masterpieces with my lower limbs over the years. This was another one to add to the collection. Jackson Pollock if you are interested there is an extensive back catalogue I can provide you with. I will sort it out when I get home but for now, I need to put one foot in front of the other. All is well for about another kilometre then the real fun started.

Once again, no obstacles anywhere in sight (I am always on the look out for an excuse with my falls as they are far too frequent without them). Anyway, clearly one of my legs was not paying attention so I tripped over my own feet, they are not even particularly large so I don’t have the standard explanation Clyde the Clown would have. Next thing I know I am back on the floor. Clearly gravity is having way too much fun with my today. The problem was this time (maybe subconsciously I was protecting my knees who knows) I didn’t break my fall at all it was a proper belly flop onto tarmac. Not quite what Tom Daley had in mind. Another important thing to note here is that when I fall there is no prima ballerina about it, I am down like a sack of bricks with some additional lead thrown in for good measure. I really give the tarmac a run for its money.

Anyway, I am getting distracted, despite my belly flop up I get and weirdly I am greeted by far too much attention from the Sunday strollers. They are passing packets of tissues in my direction, and I really cannot grasp why until one person kindly lets me know I have split my lip. As I said I really failed to break my fall in anyway so of course my fact also got involved in the belly flop. This was a full-on performance no body part was being let off the hook. With this news I tentatively checked my teeth were all intact. Thankfully all 32 were present and correct and none of them were having a go on the bucking bronco either so at least that was a small win. However, during these checks I discovered I had managed to gouge out a good chunk of my top lip from the inside so then was seriously concerned I had managed to go through my lip during my gold medal attempt at the belly flop. Not good and that explained why I could taste a lot of blood. Fantastic. I was definitely not drinking the right kind of Irn Bru today.  Thankfully after so more investigation I was reassured to discover I hadn’t managed to get the whole way through. I was not aiming for one of those stretched lip piercings today although if anyone out there is maybe this could be a new way to acquire the latest bling.

Having thanked many panicked passersby for tissues and water alongside plenty of reassuring from me that I would get a taxi home I found a bench and took a load off to try and stop my legs shaking and clear up some of the chaos I was faced with. In case anyone was wondering Red as a colour was very in during May, the trick being it helps you blend in with the catwalk. Dior I am very happy to step up to the role although based on my recent adventures I cannot guarantee I will make it to the other end of the catwalk on two feet. I did a limited job by the time my uber arrived. Limited being the key word as I quickly discovered when the uber driver took one look at me and promptly turned around and drove off. He clearly didn’t trust me to not ruin his pristine vehicle. Time to try again with take two. Thankfully driver number two was more sympathetic and scooped me up in my chaotic shocked state and got me home.

So, my nice leg stretch of a Sunday did not go quite as planned and I shocked a number of unsuspecting members of the public whilst leaving far too much of my DNA on the towpath (but luckily not in the taxi).

Having reflected on this whole escapade and my subsequent relationship with running. It is marmite relationship which keeps calling me back. My standard falls (scraped hands and knees) usually do nothing to deter me from getting back up and out – they are already so scarred both knees look like active volcanoes bubbling with lava. But this fall really thew a spanner in the works by roping in my face to be part of the fun. It took a long while to build back up my confidence and I am never one to not throw myself into any activities, but I felt much more unsteady and nervous when out walking post this latest shake up. I forced myself on a walk the day after my crash to make sure I still had the balance and confidence to put one foot in front of the other. I was walking at a snail’s pace whilst apparently doing some invisible hurdles on what felt like a surfboard (my balance was being properly tested) to ensure I was picking my feet up, so I had absolutely no risk of repeating my classic Clyde the Clown tripped over his own feet again.

It took a long old while for me to be brave enough to get back to running (not least because I had properly bruised my chin during my belly flop which made me question whether I had a functioning jaw) as well as the fact that my lip was agony and ballooned so I had an unwanted lip filler.  But also, because I really questioned what one earth, I was doing running if I just kept causing myself so much pain. It was even more so because prior to this I really felt I had found a groove with running without too many falls (clearly my famous last words jinxed it). I was really thrown out and scared to get running again. I love the challenge of running and the satisfaction of getting round plus the chance to just get some headspace whilst out. This fall also hit right when I needed the routine of running to keep me sane, so I felt completely untethered and very frustrated with myself. However, now I really questioned what I was doing with all these struggles and whether running was the right thing for me.

Despite my existential crisis around running I have gradually built up the confidence to get back to it. I needed to prove to myself that I can run and enjoy it without falling and injuring myself. It took a few rounds of thinking very hard about every step I was taking (not so fun but necessary)  To do this I have forced myself to slow down and avoid the longer runs where my legs get shot and I cannot pick my feet up so I am keeping them short and slow for the time being (like a snail doing a late night trip the local Co-op round the corner).  I still have a way to go with this and getting back to where I was, but I am taking it one run at a time and trying hard to avoid any unnecessary falls and run just for the enjoyment rather than setting my new PB. I will get there, and my friendly snail will be promoted to make it all the way the big Sainsburys at some point but for the moment I will just keep putting one foot in front of the other and hope I don’t terrify any other strangers with anymore unconventional belly flops.

My leap of faith

It’s been a while but there is a good reason for that. After lockdown I really questioned my life choices and ended up doing a 360 on my career. I decided to go back to university do a Masters degree in Physiotherapy. I know completely bonkers, what was I thinking putting myself through the trauma of studying again completely voluntarily. This is someone who on completing my Undergrad degree swore to never complete any further education, my mental health could not survive that battering again. The only answer, I must have a screw loose.

So what I earth made me make this rogue decision to throw in the rule book and start again?

In all honesty the work I was doing as a supply chain analyst was simply not bringing me any joy. I reached a point where the thought of continuing to work as I was for the next 50 years sounded endless and I knew I wanted more from my career than spending it stuck behind a screen.

Having given the talks to physios during lockdown I realised how much I got from helping others and feeling that I could give back, especially after all the help and incredible care I had received from Physios growing up. I have always loved exercise and staying fit and healthy so made the big decision to apply for a Masters to be a Physio. It felt as though I had a unique opportunity to be a role model for children with Cerebral Palsy (CP) as I would have loved the opportunity to see someone like me being my physio growing up to show me anything is possible.

What then followed was a crazy ride, I applied for the Masters courses in July to start in that September. Once I had made the decision, the thought of having to delay another year was not something I wanted to do. I felt daunted by the prospect of going back to uni after working for 6 years so didn’t want to be even older when making it back to studying. Thankfully one uni took a chance on me, I don’t really know what they were thinking, taking on someone who had done Geography and worked in food and drink start ups, physio could not be further from this path. Especially given that my peers at uni all seem to have a background in Sports Science, Anatomy or at least science. Clearly the admissions department took pity on my quarter life crisis and let me in but I am very grateful.

So how have I found the whole experience of studying physiotherapy as someone with CP. It has been simultaneously the most incredible and most stressful intense thing I have ever done. I feel I have now found my purpose in life and to have the opportunity to give back and help others is incredible but I have felt so out of my depth throughout. Imagine a blue whale drowning in a puddle, I feel that is an accurate representation of my past year and half.

I had so many reservations about starting again and going back to school. I have really struggled with feeling like I have gone backwards in comparison to my friends who all seem to be getting promotions left right and centre. Meanwhile I am back to being a student racking up even more student debt. I have felt intense loneliness as well, as I am sure is the case for many mature students but many of the other students on my Masters course had gone straight on from having just finished their undergrad degrees and have always known they wanted to do physio so I have definitely felt like the odd one out.

Throughout the course I have felt so out of my depth especially compared to others on my course who have already studied large amounts of the first year content such as anatomy. I have felt consistently under pressure to play catch up but have also found it so interesting and have really enjoyed learning so much about the human body. With regards to the practical elements, again this has been a whole new challenge for me which felt like it came so naturally to all my friends. I consistently felt bad for holding up my physio practice partner when I spent what felt like forever figuring out the latest piece of manual therapy we were just taught. In addition, being the first physio student my uni has had with CP means the lecturers and tutors need my help to fully understand how best to support me with manual skills. Given this is something I also have never done before it is a bit of a minefield with plenty of guesswork thrown in but hopefully I have helped break down those barriers and open doors for future physio students with CP.

Despite all this and all my moaning and complaining, it has been fascinating and particularly completing my first placements and having the opportunity to treat patients has been so affirming to know that I loved everyday and the chance to help people in doing what will eventually be my job was incredible. During this placement my clinical educator also had CP. This was just amazing and made such a difference for my confidence throughout the placement. Uni appeared to be slightly apprehensive about me going on placement so I was a little worried about how it would play out from a physical standpoint particularly with my balance issues. The fact my educator also has CP (seemingly to a similar degree as my own) was just brilliant, she threw herself into everything with all the patients and there was never a question of her not doing something as no one batted an eyelid so this really made a massive difference and meant I was able to get the most out of this first placement without worrying about how my CP may affect my ability to be a physio. The other worry I had was that patients would not trust me to treat them as a physio student with my CP and I was concerned I would be regularly questioned and need to do lots of explaining. Thankfully I only had a couple of patients ask me about it very politely so again this helped to bolster my confidence during my first placement.

My second placement was on a Stroke Ward and at points I struggled particularly with the manual handling. For example having to support patients in sitting who had no independent sitting balance so as a physio student, I would kneel behind the patient so support them from behind their back. This meant they would be pushing their entire bodyweight through my puny little thighs. Meanwhile I am doing all I can to keep them safe and stable in sitting while my thighs are screaming at me as they are convinced they are burning so much they are in the heart of a very active volcano. Both my entire quads are shaking like unset jelly on a trampoline but I must keep going. Even doing this for under 10 minutes and I can barely walk when I get down to transfer the patient safely to their wheel chair. Buckle up legs, you need to get used to it.

Another skill that was tested was my driving, no I don’t mean my Ford Fiesta, this is far more precious cargo. I am referring to driving patients in their wheelchairs and beds through the ward to the physio gym. I have no 3D vision so my depth perception is non existent. Any attempts I make at measuring widths or distances are wildly inaccurate which does not bode well for pushing a wheelchair down a crazy busy corridor like Piccadilly Circus on Christmas Eve when the whole UK is doing their last minute Christmas shopping. There is a tea trolly on the left next to a throng of medical doctors followed by a nurse and her medicine cart. I definitely wiped out a few ankles or wheelchair footplates including my own on door frames and obstacles but thankfully no major damage done. Don’t even get me started on trying to drive the hospital beds down the corridor to the gym – it felt like trying to parallel park a double decker bus into a parking space suitable for a Borrowers mini. Thankfully this skill developed over the 6 weeks but still an area I need to work on, I think by the end people saw me coming from the other end of the corridor and cleared the way (not sure that is a great reputation to uphold).

Now I have successfully survived year 1 and year 2 with just my final placements left before becoming a qualified physio (by some absolute miracle I made it through a second Dissertation – not something I will be looking to do again anytime soon). Despite all the stress and hard work, it has been such an interesting degree and I have loved learning and studying all about such a range of topics including neurology, critical care and respiratory – it is much broader than I had originally thought with so many different fields to work in as a physio. I am excited to meet and treat some more patients over my final placements (hopefully my ankle bashing days are over) before being let out on the real world on my own!

Physio Talk

Over lockdown thanks to a connection through my blog, I had the fantastic opportunity to do some virtual talks for groups of physiotherapists and occupational therapists (OT) along with other individuals with CP and similar injuries. The physios and OTs were keen to improve the transition of patients from paediatric (child) to adult services so wanted to hear our stories and any advice that we had for suggested changes to the current process.

From my own experience the care I received for my cerebral palsy throughout paediatrics was fantastic with a dedicated supportive team and regular check-ups and appointments. I was advised of a transition appointment to meet the adult services team so I would have a point of contact but this never happened. Therefore as an adult I continued to do my own physio based on what I had been advised when I was 17 years old. When I did need specific help it was a case of going round the houses to finally get the help I needed. Unfortunately the funding and backing of adult services is not sufficient so they are limited in what is on offer.

I got a huge amount out of this opportunity to speak to physiotherapists and occupational therapists for a number of reason but above all the chance to give back and help the physios and OTs knowing that this would then help them to improve their practice and improve the lives of other children and families was so rewarding. They were so grateful to me and the other speakers for our time and for being so open about our experiences, I felt that whatever I said would have gone down well. This is also huge for my growing confidence in public speaking; as it was my story it was such a relief to know that no one could tell me it was wrong or to be judged.

The chance to properly meet other individuals with CP meant a huge amount to me. This was the first opportunity I have had to meet others in a similar situation. Throughout all my treatment and time with CP all my interaction has either been with healthcare professionals or fully able bodied people. Each of these amazing people at the workshop had their own inspiring story to tell but the realisation that I related hugely to their experiences was a breakthrough. Up to this point I had not realised that this sense of fitting in and relatability was not something I had realised that I missed. Prior to this point my relationships have all been with fully able bodied people. This has been fantastic as I have never felt any different to my friends and family, however, after these talks I realised how much there was for me to gain by interacting with others who had such similar and relatable experiences. It felt like I had validation and internal acceptance for the previous feelings of frustration, weakness and not feeling good enough. I have always felt fully accepted my by friends which I am extremely grateful for but the chance to realise I was not alone in my sense of difference was massive and not something I realised I needed.

From a physical perspective I have felt that I fall through the gaps when it comes to sports groups or teams, not good enough to fit with the fully able bodied people but not bad enough to take part in wheelchair sports so the chance to meet other individuals similar to me was huge; and to realise I am not be alone in this was so important.

Having heard feedback from physios, it gave me real hope that things are changing for the next generation, both in the attitude to paediatric treatment and the approach to transition into adult care so they can do all that is possible to help the patients and their families. It really felt that by hearing our own experiences, it would go on to make a difference to others going through a similar process

The Lake District on Crutches… not the one

Welcome to my latest hair-brained idea-the Lake District on Cuthbert the crutches, that was quite the experience. If you want my honest advice I would not do it again with Cuthbert in tow despite how much they tried to help.

So let’s go from the beginning

The Journey

Firstly, it’s a long way-I know I did check the map before left but it’s a whole different ball game when you actually make the journey.

I started my journey by taking the 2 flights of stairs down from my flat to get my taxi, this was like climbing a mountain in itself. Carrying anything more than just a rucksack on crutches is a questionable move so by the end I was shattered and wobbly but the taxi driver came to my rescue and I made it to Euston station in just about one piece.

Upon entering the station again it was a scramble on the crutches with my bags but the extremely helpful people from Passenger Assistance came to my rescue. However, I was then taken hostage with 40 minutes to go before my train. I had envisioned a leisurely coffee and breakfast in the station whist waiting for my friend and our train. Cleary I had forgotten about the luggage and crutches as even without any bags, how was I going to carry my coffee……. magically grow a third arm? Who knows I was clearly losing it from my knackering morning.

So anyway I got side-tracked by the thought of caffeine. The Passenger Assistance staff got me to their office with an array of seats to I made myself at home. The next thing I know, they want me on the buggy so I can get on the train with another half an hour to go. I delayed them until my friend arrived so at least she knew where I was (after my very questionable directions to the passenger assistance office, as expected from me… the Geographer). So onto the buggy which I was grateful for as of course our seats were on the furthest carriage and the furthest train so very relieved to have VIP treatment.

Being chauffeured to my train

The train was packed which meant heading to and from the toilet on our 5 hour journey I definitely managed to take out our fellow passengers’ knee caps whilst wobbling down the narrow carriage aisle on crutches.

Next challenge, changing trains. The fun just kept coming. We were provided with ramps on and off the trains which were both a help and hindrance. You know my balance is dodgy on level ground so throw a steep gradient in there and it was really fun. It felt like I took 10 minutes to muster the courage to face the gradient getting off the train. Onto the platform to head to our next train. The platform had the slightest of slopes which made me feel like I was heading straight onto the train tracks but I did manage to make it on board our second and final train.

First sighting of Lake Windermere dodging tourists and geese- terrible photo as I was too knackered to move to get a better one!

Okay, we made it to Windermere without any other breakages (just). Next our accommodation was  a 20 minute walk from the station-this was not happening on crutches so a 7 minute bus trip was needed (feeling ridiculous as usually this would be a straightforward walk). So as we were on the bus we decided to go down to Lake Windermere (a further 10 minute walk from our accommodation). Little did I know this would be down a very steep hill- I know it was naivety on my part as we were in the Lake District, which is known for its mountains, so I should have been better prepared. So we had our lunch by the lake, very pretty except we were surrounded by a ton of tourists and even more geese made it interesting.

Next was to finally get to our accommodation, oh lord what an epic effort. To clarify this should a short 10 minute walk uphill from the lakeside. In reality this was a steep hill with a rucksack, weighing a ton, pulling me back down the hill. I am extremely grateful to my friend for lugging my other bag (along with her own) up that hill. I have not previously done more than just moving round the house on crutches so my arms did not know what hit them. In reality the only way for me to get up the hill was to use my injured leg and partially put weight through it as my arms were not up to the battle of letting me just use my left leg. Somehow (with stops every 5 minutes) after what felt like hours we made it to the accommodation to find 2 flights of stairs-ah the fun doesn’t stop. So finally got there and I crashed and sent my friend to do the food shop (sounds like a great trip for her so far but I promise she had a lovely time).

Windermere

That evening we decided to go out for a pre dinner walk and try to find a way down to the lake which avoided the tourists and geese. So back down the hill… this time the route was less steep and crowded and no bags so an improvement but again I was forced to put some weight on my injured leg as I didn’t want to go flying down the hill. To our intense frustration despite our efforts all other access to the Lake was private so we couldn’t get through. The only answer-wine. At least we found a pub to help us with this. So next (after only 1 glass of wine-anymore and I would not have any hope), we had to come BACK UP THE HILL and TWO FLIGHTS OF STAIRS to our accommodation. If the downhill was a struggle the uphill after wine was a whole new challenge. Every time I put any weight through my injured leg I heard my Doctor telling me off so would then manage about three hops without putting weight on it before my arms screamed at me and I  had to give in.  WE GOT THERE.

Lake Winderemere Boat Cruise

The next day my friend was keen to do something together so a boat trip it was. This was lovely (once we made it down the dreaded hill to the Lake) but a great way for me to see more views as climbing the mountains was off the cards and so nice to spend time with my friend. At the first stop on the boat trip my friend headed off on a hike and I continued onto the next stop. Here the town was a mile from the lakeside so there was no way I was doing a 20 minute walk on crutches! I found a lovely bench by the lakeside for my lunch and did some lovely people watching with a view (seeing people out and about living their lives was so lovely and great for my recent cabin fever). I wish I could have joined my friend as the scenery was stunning and being in nature makes me so happy but I will be back on two legs. I WILL BE BACK.

After the boat trip it was back up the hill SO MUCH FUN. At least the hordes of tourists cleared out the way when they saw my shambolic self, wobbling toward them so I had a clear route to my destination. And crash onto the sofa phew! However all these long crutch sessions had another consequence on top of the dead arms, blisters ah so fun. I was popping Nurofen like smarties at the end of each day but it was worth it

Our last day in Windermere meant only one thing, back on with the bags, feeling like a overburdened turtle we headed back down my favourite hill. My friend had finally discovered a way to get to the lake which escaped the tourists and geese-hooray. The downside, it was a mile and a half away there and back. Oh boy here we go. Thankfully once we were down the hill it was flat and there were plenty of benches to crash onto for a breather to allow my arms to recover marginally so they were not complete jelly. Once again I had to resort to using my injured right leg as the one leg life was just not getting me anywhere and I was conscious of going at the pace of a snail in superglue along the lakeside for my friend so had to do all I could to keep moving. It felt like we had completed marathon distances when we finally got back but it was worth it for a change of scene

Seascale

Onto our next stop to the West of the Lakes on the coast-Seascale. We were staying in lovely woodland cabin… in the middle of nowhere surrounded by sheep, chickens and mountains. Idyllic apart from the minor hiccup that the toilet was outside and accessed via some deep gravel so a battle on crutches. In addition the main bedroom was up a very steep staircase (code word for ladder) so it was the (very comfortable) sofa-bed for me or I would have risked breaking the other leg. This is the perfect location for escaping and spending your days out in nature walking and exploring the lakes. It was not so much the perfect location for staying put with a broken knee. No WIFI and no people watching options so it was the sheep and chickens for entertainment (yes I did resort to naming the sheep- Daphne, Daisy (who I quickly realised was male so had a name change to Donald) and Dennis.

My friends left me for a full day hike (10 am to 7pm) so my day consisted of reading, attempting a nap- the cabin had no curtains over its lovely huge windows so it was sunrise wake up calls all round just what we needed from a holiday. Between the reading and napping were missions to the bathroom and chatting to my new non-human friends. I was so excited to have my friends back after their day out and they were knackered from their long hike but I just waited patiently for them to cook me dinner. I felt very two faced as at the end of the day my leg would be sore so I would be absolutely no help getting dinner then the next minute I would be frustrated with myself so walk around making a cup of tea so my friends had no idea which way I was going next, couch potato or sprightly Sally who chose to ignore her doctors’ advice.

The next day we took a team trip to Wast Water. One of my friends headed off on another hike my other friend was exhausted from the hike the day before so I had company! Hooray! It was lovely to have a change of scene and we had some great people watching opportunities with families spending the day by the lake with swimming, kayaking and paddle-boarding to entertain us. It was all great when I could stay seated until I needed to loo. The only option was a nature wee in some deep ferns and bracken. Crouching was a real challenge and I definitely felt my knee crunching on the way down and up but needs must and all my friends will tell you how much water I drink. This meant I had to be extremely strict with myself to stop drinking after 9 pm to avoid a midnight hop to the loo back at our cabin. I am pleased to report I succeeded and did not need any pitch black bathroom hopathons.

Final Journey

Our last day involved a long drive and train journey home so was a long journey. We had a lunch stop at another lake which was a 5 minute walk from the car park. However, this 5 minute walk included giant dodgy steps, tree roots and a pebbly beach so this trip has kept me and my crutches guessing to the very end. We stopped at services on the road and I had to use the disabled lift to access the services. The lift with a door which weighed a tonne so was nigh on impossible to open. We made it to the station where again we had passenger assistance. However there was no buggy waiting for us this time, just a friendly lady to carry my bag (so not sure how helpful it was but hey ho!) Thankfully our return train was a lot less busy so no one lost their knee caps and we made it back to London. At St Pancreas, I had a lovely man waiting for me with a wheelchair which was a relief as it was miles to the exit. However he quickly got me to a taxi rank with my bags loaded onboard before I had a chance to explain I wanted an Uber so my only option was to spend a tonne on my taxi home! Finally home after 12 hours travelling and a long day.

This trip on crutches made me realize how difficult and inaccessible these trips are for those less mobile than myself and despite the fact the trip was very frustrating and difficult and my desperate wish to be out walking with my pals I was very grateful to know the crutches were temporary and that I would have future opportunities to visit and walk in the Lakes. P.S. sorry for the length of this post I had to occupy myself on a weekend from the sofa so if you made it this far, thank you so much.

Rubbish

The smile is deceptive

Downright rubbish. That’s what. So you know how I was just celebrating being rid of Bill the Boot and excited to be out enjoying the world re-opening. Life had other plans and it is now a mismatched déjà vu. I have fractured my right knee. Clearly my right side was just fed up with my left foot getting all the attention so my right knee wanted to join the party. Excuse me, you were definitely not invited so if you would kindly piss right off that would be great. But no. Here we are again fractured knee and back on crutches. Only this time it is worse. I have to balance on my left leg (the leg affected by my cerebral plasy). One word, disaster. So not only do I feel shit about the fact I have screwed my knee and that is just too painful, on top of that when I want to go anywhere on the crutches I am reminded of how weak my left side is and how I have as much balance as a pancake trying to stay on the ceiling, nil.

I reckon it took a month for me to realise something was wrong due to my ridiculously high pain threshold. I have always thought that was a good thing but when I can’t identify that I have had a fracture its clearly causing some mixed messages. Both my doctor and physio were convinced it was just my tendons so why did the bones need to get involved? I just cannot listen to my own body clearly.

Sorry for being the biggest downer but it’s pretty tricky right now as I can’t even bake as I don’t have the option of hopping on my left leg without crutches so carrying boxes of eggs round the kitchen is a no go. On top of which the world is waking up and I feel trapped and reliant on others for every single tiny thing. Not good.

I know things could be worse as is always the case and I am so grateful to be mobile enough to do all that I do but this has been a real set back. Even more so now that I feel I will not be able to do the amount of activity I want to due to the continuous injuries, the only option I feel I have going forward is to do less of what I love which is hard. Really hard. It blows my mind that I have no breakages for 25 years and then bam two fractures in the past six  months, is this just my new normal if I want to keep running like a crazy lady, run, crash, run, crash? That’s not going to work so I need to get my thinking cap on and figure out another solution to keep me sane.

I guess that will just have to be more variety and knowing when to say no or turn things down (impossible for me so not sure how that will work). It’s going to be a long learning curve and I will get there one day but for now I just need to sit still-at least I have the tennis and football.

Facing Reality

Hello friends. I know it has been a while so apologies for the lack of brain waves filling your lives recently (although I know you have all been far too busy making the most of the pubs reopening to notice so all is good).

Thankfully I am now rid of Bill the Boot-that was just a ridiculously long ordeal which I am very pleased to be past-who knew a fractured foot which I didn’t even feel, or see on the scan, would occupy so much of my time – just greedy really. I will be forever grateful for all of your support during my Brownie Bakeathon to keep me sane as well as raise an incredible amount of money for such a worthy cause, (raising £7,200 for Scope helped put spring in my broken step!

Getting rid of Bill meant one thing after a tonne of physio (actually only 4 weeks but it felt like an eternity)……. I WAS ALLOWED TO RUN.

However, after all the blood sweat and tears it took to get me back to running (single leg squats are, and will always be, hideous-my left leg is just not designed to do that) I was expecting to be Usain Bolt and the reality was so far from that, it was a disaster. A disaster that my brain was not ready to process. I have been plugging away at Couch to 5K once I was given the green light on running again by my physio, I had to run on very flat, short grass as I did not trust my balance after three months of not using my left leg and felt like Bambi on jelly so had to stay well clear of potholes, dodgy pavements and mismatched footpath so the Wimbledon Centre Court style grass felt like the right place to start.

Okay so that is all well and good, I felt like I could stand upright without falling over and crashing down. So to begin running was where the problems started. With all the physio the focus was now on my magnificent new gait, long strides and knees high so I could clear the ground- simple. In my mind I was bounding along with nice high knees, excellent clearance arms pumping just like any normal person (or Usain Bolt). How wrong I was as you can see from the video.  Clearly there is disconnect between my legs and brain which I was not ready for, my own perception and reality were worlds apart and it was a strange place to be. Normal running is not feasible for me and I know that but I just did not expect to look like I do in this video. In reality my immediate response is to question why I would bother running if I look like that (not that this is something anyone has ever said but we are all our own worst critic so I had to voice it although it was not as stylish voice over, much more of a garbled mess which only I could understand). I was shocked that despite all my work on long strides to make sure that I had clearance with my left leg to balance my gait. I would still insist on dragging my left leg like it was made of lead and my arms just looked like a wooden puppet without any use.  

I was not ready to accept that was what I looked like and then seeing my walking was just a whole other shocker-who really wants to look like that? I now start to understand why bouncers at university clubs thought I was totally beyond gone when I had only had a couple of drinks. I then questioned all the interactions I had in the past with people who I don’t know and made me think I almost need a sign on my forehead to explain this crazy lady walking across the restaurant and why I look the way that I do, or that cerebral palsy (CP) needs to be the first thing I mention after my name when I meet someone. I was completely thrown by it and felt like the Centre Court grass had been pulled out from under my very unstable legs. And you know the mad thing, I requested this video as I wanted to see what else I needed to work on, I mean how much punishment do I really want?

I am so proud of the fact I have always done whatever I want to do and I know I have CP but I just completely did not recognise the fact that I look different as a result of that (bit slow off the mark I know only 26 years down the line here) but you know what-there is no normal, everyone is unique and that is what makes us such brilliant and wonderful humans. It has been a tricky few weeks giving myself this pep talk but I am getting there slowly. There is no point hiding from every photo or video there ever was of me, I am who I am and I can’t do anything about that as we only have one body so I just need to suck it up and make the most of it. The fact I am getting out running and walking is something to be hugely proud of so who actually cares what it looks like? If people do care they are clearly not people I want to bother with. I just need to work on convincing myself of that as it would be pretty useful and may come in handy one day.

Bill the Boot and the Brownie Bakeathon

Welcome to Lockdown 3…. don’t panic – I can help you because Yazzi’s Kitchen has reopened after its Christmas break to continue baking brownies to raise money for Scope (a brilliant disability equality charity). If you are anything like me and need chocolate every single day, then a January in Lockdown is the ultimate time for all things chocolate. So let me brighten up your grey, dark January days with a box of chocolate brownies.

This bakeathon which kicked off in November has not been without its fun and games. Let me introduce you to Bill the Boot, he is my weight displacement boot that I have had to wear for the last two months since fracturing a bone in my foot while running in the autumn.

This elephant on a treadmill is now on a pogo stick in outer space. This video is also co-starring Chloe and Christian the Crutches

This development has made baking all the more fun – especially when trying to carry 12 eggs or a knife whilst hopping. No major disasters yet although I don’t want to jinx it as the hopathon is still in full force 6 weeks down the line. My right leg is really not enjoying this drama, let me tell you I have definitely gained a Beyoncé Butt – just a shame it is so lopsided!

Baking is easier without the assistance of Chloe and Christian (my charming crutches) so that I can have my arms free to keep my balance and lug around mega sacks of chocolate

Let me offer one piece of advice based on my time to with Bill so far. Do not be a hero. If something is painful – make sure you get answers. My left foot has not been having a good time since September but it took until Mid November to find the stress fracture and be saved by Bill so this whole drama has become a marathon epic. This is not quite the friendship I envisioned but you’ve gotta do what you gotta do.

Baking has definitely kept me and Bill sane even if I still do not trust myself on crutches. On some days it feels like I am hopping on custard. My balance is bad enough on a good day so this is quite the challenge.

I thought I would be free from Bill this week but unfortunately my left foot is in slow motion so taking its own sweet time to heal. As a result I am back on crutches and still in with Bill for another 3 weeks. I suppose the one benefit of lockdown is I am not missing out on anything even if I do feel like I am in some weird Doctor Who time warp where it is a continuous cycle of wake up, hop, work, bake, hop, collapse and sleep.

If you would like to have a box of happiness delivered and help raise money for Scope (and keep me hopping) hit this link to my Just Giving page to donate: https://www.justgiving.com/crowdfunding/belikeyazzi

CHOCOLATE BROWNIES

Who’s excited?

Who needs chocolate?

I know a silly question – if you don’t need chocolate 24/7 then I am not sure why you are here to be honest.

If you need something to fuel your lockdown home workouts or Netflix marathons you have come to the right place.

Now that I have your attention I can reveal my big plans (or not so big, maybe mouse sized is more accurate).

They stack well for the ultimate drool worthy goo shot

BROWNIES

I want to combine my love for baking with a cause that is very close to my heart, equality for the disabled. I will be baking and sending brownies to people who donate to my charity fundraising for Scope – The Disability Equality Charity.

I started writing this blog in 2019 to help empower people to be proud of their differences whatever they may be. These differences should never stop people doing what they most want to do. I know that I am extremely fortunate to be able to find a way of doing almost anything I want despite my cerebral palsy (just let me know if you want to learn how to walk like a pigeon I know it is very much on trend at the moment). This is not the case for a lot of other people. These people have huge amounts to contribute to society but are stopped due to the attitudes of other people and the prejudices they face daily. This is why I feel the need to support Scope.

Scope are an incredible charity who want to  achieve a society where all disabled people enjoy equality and fairness. They provide practical advice and emotional support whenever people need them most. They use their collective power to change attitudes and end injustice. They campaign relentlessly to create a fairer society.

So if you need a chocolate hit to cheer up these darker evenings and satisfy those cravings, place please help me support such an important cause (or you can ask me to send a box to a friend). I cannot guarantee I won’t burn myself in the process but it’s a risk I am willing to take (have a read of my earlier blog cooking here: yasmindenehy.home.blog/2019/10/22/cooking/ for some other kitchen related injuries I have achieved).

So let’s assess the options – keeping everyone happy is hard work so hope you like the sound of one of the below:

Chocolate

Chocolate Biscoff

Walnut

Raspberry and White Blondies

Vegan Double Chocolate

Gluten Free Chocolate

Brownies will be delivered in boxes of six. I will bake brownies over weekends and dispatch them on Mondays for delivery via Royal Mail. 

Minimum donation: £10 per box and all profits will go to Scope.

Mixed boxes available on request.

Lucky you – beautiful box and limited edition stickers included

To donate and order your brownies please visit: https://www.justgiving.com/crowdfunding/belikeyazzi

I don’t take any responsibility for the consequences of of eating the whole box in one go. Congratulations are required I reckon.

Now that you have made it through and placed your order you are rewarded wit the ultimate photo-lockdown fashion at its finest!

Thank you in advance!

Scars

Scars are there to tell a story (even if it is one that I don’t remember!)

The issue I face is that I don’t put two and two together, when I fall I just get up and keep going, I don’t think about the consequences and the fact that the cuts and bruises I have gained are going to be painful, they are going to take time to heal and they will most likely result in another beautiful cracker to add to my ever growing collection of scars criss-crossing all over my body. I just march on through a minefield of brambles and nettles without thinking twice of the disaster this will make of my shins, who doesn’t love a few scratches to pretend they have been ravaged by a savage cat!

My emotional or not so emotional response the scars that I have goes up and down (a bit like the dodgy roads and tracks that are responsible for them!) At times I honestly couldn’t care less about them (usually when I haven’t fallen for a while so everything is still in one piece) at these times everything feels top dollar and the scars I have are just there, part of me nothing I can do about it sorry pal.

At other times (normally a few days after I have fallen and taken a chunk out of my leg or arm), it dawns on me that this latest addition is going to stop me running for a few days (this is because the terror of falling again on my open wounded knee is too great, it’s like the fear of giving your friends some really severe food poisoning when they are brave enough to try your latest creation. Also, this latest injury is going to take its sweet time to heal. I also realise that hang on, as I have managed to get a pretty impressive gouge, that impact will probably also have some decent bruising along with it (like a really shocking 2-for-1 deal) so then with the bruising it is like my body has created its own army camouflage (I mean it is pretty rubbish as it doesn’t help to hide the heal wound or scars).

Recently for me after a particularly bad spell of cumulative injuries from multiple falls, I have had enough, I have just got fed up of the appalling state of my arms and legs. On more occasions than I can count I have discovered a new scar or bruise that I just have absolutely no clue how I have got them all over the place. It just frustrated me as I realised these scars really weren’t going anywhere and would stick around for the long haullike that One Annoying Uncle (OAN) who just hangs around after Christmas so somehow he is still in your house in February, I mean come on you must have got the message now OAN it is time to jog on. So much so that I just haven’t dared to go any faster than walking for fear that I trip fall and go back round to square one. As a result of my lack of running, I am in pretty good shape wound wise, currently no scabs or bruises. It feels like I have developed my own version of Would You Rather? Run, fall, wound bruise, scar or don’t move, stay upright? It’s chaos for my head-like and Eternal Brain Earthquake (EBE). When the EBE gets going there is just no chance-whichever side of the great divide you choose is going to end in disaster so I suppose you may as well enjoy the ride.

I think this is what I am slowly coming to realise. Yes, my scars annoy me (even more so when I pick up a bit of a tan and they stand out even more (I look like the man painting the zebra crossing was absolutely drunk off his rocker and has no clue what a straight line is- I am just a giant Wonky Zebra Crossing)-even better when I have to show off these crackers to more of the world whilst I wear my shorts and strappy tops in the warmer weather. But my scars are prove there to me that I can do hard things (well maybe not hard things as everyone else makes their daily 5km run look like a breeze) but things that I find hard. They prove to me that I am able to push myself (as I fall more when I am tired). Of course the ideal situation would be to do these things without going flying, but you know what, this is not going to happen. If I want to challenge myself I will fall but the point is I get back up and keep going. They prove to me that my body is amazing. It lets me get out and prove to myself and everyone else that it is possible. It is better to live my life and do these things that are hard rather than living in fear and wrapping myself in cotton wool. Also because that would be exceptionally hot so I would become a Very Slimy Cloud (VSC) (this is definitely worse than a few scars-nobody would like to see that I think the recent heat wave has proven that sweat/slime is not a good look). So moral of this weird and wonderful post is go for the Wonky Zebra Crossing over the Very Slimey Cloud.

BeLikeYazzi

Something a bit different from me but this is the best method I have found for cheering myself up when I need to laugh. Turn up the volume and put on a good tune. I heard this song whilst out running recently and the lyrics really resonated, despite being knackered at the end of my run I was singing along having the best time (sorry to all the local residents I woke up with my beautiful out of breath singing).

As the song says we all have to do what makes us happy even if it is different to what others may do. I know I look like I have been hitting the Jägerbombs too hard on a Friday night (I haven’t had a single drink unless water counts). I am definitely no Beyoncé when it comes to my dance moves. This is me dancing, having the best time and loving life so I couldn’t care less if others think I look stupid. This is my time to #BeLikeYazzi.

I want to use this platform to celebrate everything that makes us unique. All those amazing things that make us diverse, special and crazy human beings. Hopefully I can make you laugh along the way. What is your #BeLikeYazzi moment? Let me know in the comments below.

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